The Forever Fix: Gene Therapy and the Boy Who Saved It

On a bright September day in 2008, 8-year-old Corey Haas went to the Philadelphia zoo with his parents, and screamed. Four days earlier he had gene therapy to cure his hereditary blindness, and now the sun was hurting his eyes. Corey’s suddenly restored vision marked a renaissance in gene therapy, a biotechnology sidelined nine years earlier when an 18-year-old died in a similar experiment in the very same Philadelphia hospital.

The Forever Fix tells Corey’s inspiring story against the backdrop of other children treated since the field was born in 1990, and those looking ahead to future gene therapy. The treatments pioneered on rare diseases will reverberate to many more common ones. The Forever Fix is the tale of a biotechnology reborn. To be published in early 2012 by St. Martin's Press.

Selected Works

Project to engage students in helping families with rare genetic diseases
Book Club Reader's Guide
Many challenging questions to stimulate thought and discussion.
Instructor's Guide
38 discussion questions to get students thinking and talking about gene therapy, including the science, ethical issues, and the drug approval process.
Narrative science
The Forever Fix is the uplifting true story of 8-year-old Corey Haas, who was cured of hereditary blindness just 4 days after gene therapy.
College Textbooks
A spectacularly-illustrated, clearly written human anatomy and physiology textbook, used in pre-health profession programs throughout the U.S.
A highly engaging, clearly written, beautifully illustrated introduction to the science of human genetics for the non-scientist. Now in its 10th edition.
DNA reflects who we are -- but it isn’t the whole story.

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