Gregor Mendel: should he stay or should he go (in textbooks)? (National Library of Medicine)
The Forever Fix gang: Corey Haas with book, surrounded by mom Nancy and dad Ethan Haas, Ricki Lewis on left next to Lori and Hannah Sames. At book signing 3/24/12, Barnes + Noble, Albany NY.
The Forever Fix: Gene Therapy and the Boy Who Saved It (324.0KB)
flyer / handout 
Glenn Nichols, surrounded by his hospice team. The author is in yellow.
Archives
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Genetic LinkageHidden Meanings in Our Genomes – And What To Do With MendelAugust 20, 2012
AnticipationFebruary 25, 2012 
Jordan and Hailey Kohl. Spinocerebellar ataxia type 2 affects several members of their family, including Jordan.
Doctors once blamed patients for anticipation, as if people with sick older relatives could worry themselves into suffering similarly. Then, in 1991, discovery of a new type of mutation explained the curious worsening of fragile X syndrome: an expanding triplet repeat. (more…) "Dignity Therapy" Paper Ignores HospiceJuly 10, 2011
”Dignity therapy" is a “novel psychotherapeutic approach” that gives patients with a 6-month life expectancy “an opportunity to reflect on things that matter most to them or that they would most want remembered.” In these days of medical experts such as Sarah Palin equating reimbursed end-of-life discussions to death panels killing granny, an outcomes evaluation of any such intervention is essential. (more…)
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